It would appear I am a fair weather blogger! I have been struggling a lot and if I am honest I am not good at admitting it. So the fact that I am here typing shows I am feeling better. I think when you have a condition that leaves you in pain pretty much all of the time you become really good at putting on a front and looking to the outside world that all is fine. It is hard to let that guard drop because if it does you might just not get back to functioning like a normal human again.
But actually this time it was not so much a really bad flare up, although I have been knackered and things have been popping it wasn't really any worse than normal. It was more of a mental thing.
When I started this the Spartan Sprint was very much the end game. That was what I was working towards, while trying to raise a bit of awareness (and money please feel free to donate https://www.justgiving.com/bendyspartan/) about EDS. Within my circle of friends I have done that, people who have people I their family have been in touch and it has been great to feel like I have aided understanding a little bit.
So the Spartan, well I think that has been part of the problem. With less than a month to go I am not as fit as I wanted to be, although my expectations were perhaps a little unrealistic. I was genuinely concerned about making it round, both because of fitness and the fear of something dislocating. In my head I think I had convinced myself that if I got fit enough EDS would magically heal itself. Hmmmmm that isn't going to happen, you numpty!
So yes I have been struggling, I have still been plodding along and training, maybe not as much as I could have but I have been trying.
Yesterday I went to bootcamp. Now I would like to point out that this isn't a military style shout at you till you cry kind of bootcamp. It is a very lovely group of folk that just want you to do your best. I went. It was a struggle to get there but I went. First off it was blooming freezing, I had a subluxation of the shoulder after dislocating it on Saturday with a heap of muscle pain around it, my back is not 100% aligned and is refusing to go back in and I have the usual dislocating toes. I thought about not going. But I went. I told myself I would modify and I wouldn't do any shoulder stuff. But I was there and I thought well I just try and do as much as I could. I did it, I gave 100% and I completed everything. It might not have looked like it to anyone else but it was a huge achievement for me.
Not only did it get me through bootcamp but it has given me the confidence to believe I can get round the Spartan. I had visions of galloping round the course, leaping over obstacles, gracefully rising to the top of the rope climb. Yeah, there is going to be nothing graceful about me hauling my bahooki round, over and under to get to the finish! But I will get to the finish, dislocations, subluxations it doesn't matter I can push on through and I can do it.
And do you know what the Spartan isn't the end, I have a feeling it is just the beginning!
I have EDS hypermobility and I am a Spartan Survivor! But now what?
Showing posts with label tiredness. Show all posts
Showing posts with label tiredness. Show all posts
Tuesday, 26 August 2014
Thursday, 8 May 2014
Trails and toast
I am a pretty much a glass half full type of girl. I like to be positive, up beat, enthusiastic, to the point of being annoying some may suggest. I don't like to sound like I am moaning, I know there are plenty people who are worse off than me. So it is hard for me to admit when the going get tough but the point of this blog is to raise awareness of EDS hypermobility so I guess I need to be honest too. To admit defeat even. Don't panic I'm not giving up.
I had a great weekend down at Mum's, although I didn't do any proper training, thanks to the mini personal trainer it was non-stop and I was pleased to still be able to show 'em how it is done on a trampoline! we went to Whinlatter (which I would highly recommend) and walked, ran, jumped and played all day. We had a great time and I kept food in check!
Bank holiday Monday I got up, went out and ran (well with some walking thrown in) 5k, I felt great. it was a really good trail run, along the river with some pretty steep hills thrown in too. I love trails! Toe dislocated for the first 1k or so and my rib popped a bit but in the grand scheme of things I felt great. Went out for lunch made good food choices, I felt positive, strong and ready to take on the Spartan challenge.
Tuesday started OK, I had already decided I would have an easy day exercise wise. Food wise I did fine, but as the day went on I got tired, really tired. Now I am mostly tired, I blame the 5 year old sleep terrorist. But this was like that heavy cloud that comes down and makes you feel a bit like you are walking through syrup, mmmm syrup. Anyway that fog that makes it hard to concentrate, to think and certainly to do anything energetic!
By Tuesday night I was shattered and I hurt - everywhere. Now there are many parts of EDS that I dislike but I think for me this is the worst. Dislocations are horrible but you can say OK I dislocated by *insert body part here* and people understand. But it is hard to explain the severity of the hurt when you just hurt everywhere. I think the only thing I can compare it to is flu, possibly even man flu! Everything aches and stiffens up. Sitting still is agony. Moving is too much of an effort. My hips gave way as I stood up. I was in a proper grump with myself. My hands turned into claws, and while it was funny when it happened in Friends......
Wednesday I resorted to painkillers and toast a sure sign that I am sore! Food was carbilicious rather than nutritious. The pain (and then the painkillers) makes me feel sick. Thank goodness for computers because when I tried to write a hand written note I was very nearly reduced to tears. However, if you had passed me on the street you would not have known anything was wrong - I looked fine. Not particularly glamorous but fine. And I think that makes it so hard to admit how tough it can be because you look OK, but all you want to do is curl up in a ball and have a good cry. Of course, life goes on. I work, I have a family, I can't just curl up in a darkened room until it passes. So there I've said it out loud, it hurt, it was hard, I hate it, it makes me want to cry. Maybe I need to say it more and stop trying to fight it but I probably wont.
Happily it hasn't lasted long and today (Thursday) I feel loads better. Tomorrow I will run. And I'll smile because as tough as it gets on my good days I can conquer the world, as long as I can walk some of the way!
I had a great weekend down at Mum's, although I didn't do any proper training, thanks to the mini personal trainer it was non-stop and I was pleased to still be able to show 'em how it is done on a trampoline! we went to Whinlatter (which I would highly recommend) and walked, ran, jumped and played all day. We had a great time and I kept food in check!
Bank holiday Monday I got up, went out and ran (well with some walking thrown in) 5k, I felt great. it was a really good trail run, along the river with some pretty steep hills thrown in too. I love trails! Toe dislocated for the first 1k or so and my rib popped a bit but in the grand scheme of things I felt great. Went out for lunch made good food choices, I felt positive, strong and ready to take on the Spartan challenge.
Tuesday started OK, I had already decided I would have an easy day exercise wise. Food wise I did fine, but as the day went on I got tired, really tired. Now I am mostly tired, I blame the 5 year old sleep terrorist. But this was like that heavy cloud that comes down and makes you feel a bit like you are walking through syrup, mmmm syrup. Anyway that fog that makes it hard to concentrate, to think and certainly to do anything energetic!
By Tuesday night I was shattered and I hurt - everywhere. Now there are many parts of EDS that I dislike but I think for me this is the worst. Dislocations are horrible but you can say OK I dislocated by *insert body part here* and people understand. But it is hard to explain the severity of the hurt when you just hurt everywhere. I think the only thing I can compare it to is flu, possibly even man flu! Everything aches and stiffens up. Sitting still is agony. Moving is too much of an effort. My hips gave way as I stood up. I was in a proper grump with myself. My hands turned into claws, and while it was funny when it happened in Friends......
Wednesday I resorted to painkillers and toast a sure sign that I am sore! Food was carbilicious rather than nutritious. The pain (and then the painkillers) makes me feel sick. Thank goodness for computers because when I tried to write a hand written note I was very nearly reduced to tears. However, if you had passed me on the street you would not have known anything was wrong - I looked fine. Not particularly glamorous but fine. And I think that makes it so hard to admit how tough it can be because you look OK, but all you want to do is curl up in a ball and have a good cry. Of course, life goes on. I work, I have a family, I can't just curl up in a darkened room until it passes. So there I've said it out loud, it hurt, it was hard, I hate it, it makes me want to cry. Maybe I need to say it more and stop trying to fight it but I probably wont.
Happily it hasn't lasted long and today (Thursday) I feel loads better. Tomorrow I will run. And I'll smile because as tough as it gets on my good days I can conquer the world, as long as I can walk some of the way!
Thursday, 1 May 2014
Mojo lost......and found!
It has been a little while, I've not blogged because well I've not had much to blog about if I am honest. I had a good two, maybe three weeks of not much training at all. I was ill, it was the school holidays, work was busy, I had stuff to do, like you know going shopping, watching TV all the really important stuff that we do when we are not doing what we should be doing!
With the realisation that I have less than five months to the Spartan and I am still nowhere near ready, I thought I'd best get back to it. Me and the mister had a night out in Glasgow on Saturday and I got up to go to the hotel gym at 8am on Sunday morning - I know check me out! I spend a lot of the day thinking how easy training would be if I could just get up and go downstairs to the gym, then it dawned on me. I can. Well OK not to a nice air-conditioned fancy pants gym. But in my garden I have a bike, I have a skipping rope, I have a trampoline, I have roller skates, I have hula hoops, inside there are more workout DVDs than I can to mention and at the front door (which leads to a whole heap of running options) there are my trainers. I can go downstairs and go straight to the gym, its just a different kind of gym. Unfortunately I doubt I will return to a delicious breakfast buffet but a girl can't get everything.
So Monday I went for a run, Tuesday I did a DIY circuit mash up in the garden then I went for a run. This was a tough run. First off it was hot - don't worry the situation was quickly rectified and we are back to cold and rain. More of a pain was my lower back and right hip being really unstable for the majority of the run. Meaning my muscles, especially my core had to work a whole lot harder to keep everything in place, it was hard going, I am not going to lie I struggled, I really struggled. As I neared home my left hip, obviously not happy with the amount of attention the right one was getting, decided to protest by popping out, thankfully after a little attention and reassurance it was just as important it popped back in - but I was sore for the rest of the day.
Not one to be deterred Wednesday I went for a run, five minutes in and my toe dislocated and would go back in through wiggling alone. As I sat on the pavement putting it back in, I question what I was doing, is it really worth it? Maybe I should just not bother. But I gave myself a good Man The F**k Up talking too, remembered all the people who are a lot worse off than me, all the people who inspire me (this lovely lady for a start http://blog.spartanrace.com/overcoming-obstacles-amanda-sullivan/) and I popped my toe back in, put my trainers back on and did it. I was faster, I pushed myself further, I felt good, I think I can do this! Don't get me wrong, I hurt, I was falling asleep by 8pm, I am still slow but I can and will do it.
May is EDS awareness month - I hope this blog is telling a few more people about EDS and giving a small insight to what it is like (remember I am pretty lucky with my symptoms) take a look for some more info https://www.ehlers-danlos.org/get-involved/may-awareness-month-2014
With the realisation that I have less than five months to the Spartan and I am still nowhere near ready, I thought I'd best get back to it. Me and the mister had a night out in Glasgow on Saturday and I got up to go to the hotel gym at 8am on Sunday morning - I know check me out! I spend a lot of the day thinking how easy training would be if I could just get up and go downstairs to the gym, then it dawned on me. I can. Well OK not to a nice air-conditioned fancy pants gym. But in my garden I have a bike, I have a skipping rope, I have a trampoline, I have roller skates, I have hula hoops, inside there are more workout DVDs than I can to mention and at the front door (which leads to a whole heap of running options) there are my trainers. I can go downstairs and go straight to the gym, its just a different kind of gym. Unfortunately I doubt I will return to a delicious breakfast buffet but a girl can't get everything.
So Monday I went for a run, Tuesday I did a DIY circuit mash up in the garden then I went for a run. This was a tough run. First off it was hot - don't worry the situation was quickly rectified and we are back to cold and rain. More of a pain was my lower back and right hip being really unstable for the majority of the run. Meaning my muscles, especially my core had to work a whole lot harder to keep everything in place, it was hard going, I am not going to lie I struggled, I really struggled. As I neared home my left hip, obviously not happy with the amount of attention the right one was getting, decided to protest by popping out, thankfully after a little attention and reassurance it was just as important it popped back in - but I was sore for the rest of the day.
Not one to be deterred Wednesday I went for a run, five minutes in and my toe dislocated and would go back in through wiggling alone. As I sat on the pavement putting it back in, I question what I was doing, is it really worth it? Maybe I should just not bother. But I gave myself a good Man The F**k Up talking too, remembered all the people who are a lot worse off than me, all the people who inspire me (this lovely lady for a start http://blog.spartanrace.com/overcoming-obstacles-amanda-sullivan/) and I popped my toe back in, put my trainers back on and did it. I was faster, I pushed myself further, I felt good, I think I can do this! Don't get me wrong, I hurt, I was falling asleep by 8pm, I am still slow but I can and will do it.
May is EDS awareness month - I hope this blog is telling a few more people about EDS and giving a small insight to what it is like (remember I am pretty lucky with my symptoms) take a look for some more info https://www.ehlers-danlos.org/get-involved/may-awareness-month-2014
Friday, 7 February 2014
The fog
It is not the fog outside that is hampering my progress, although going out in the freezing fog is not that appealing! But the brain fog. One of the issues with Hypermobile EDS is tiredness. Which sounds a bit pathetic doesn't it? I mean everyone gets tired. I have a 5 year old sleep terrorist so I am permanently at some level of tiredness but when EDS tiredness hits it is on a different level.
This week it hit, I can only describe as being a bit like when you have flu, you know when everything aches, and you are just so exhausted you could happily cry. Even the thought of actually walking upstairs to go to bed is a bit much of an effort and you think twice about having a drink of water because lifting the glass just seems like an impossible task. So once C has been in bed this week I have barely moved off the sofa, tea has been drunk and not much else has been achieved.
I have stuck to my 30 minutes a day but this has mostly been walking and I really need to up my game. Food wise has not been too bad have resisted the extremely strong urge to survive off toast and toast alone.
On Monday I did venture off the sofa and have a clear out of clothes - I have a vac pack of stuff that is a wee bit too tight, it will be opened at the end of April and my word it had better fit!
So the moral of the story is I need to man up, I genuinely think if I can push myself to be more active through the day I will be less tired at night, if I can strengthen my muscles it will not be as much of an effort to hold everything in place. That's the plan anyway - I'll keep you updated!
Please give me a kick and make sure I move my bahooki!
This week it hit, I can only describe as being a bit like when you have flu, you know when everything aches, and you are just so exhausted you could happily cry. Even the thought of actually walking upstairs to go to bed is a bit much of an effort and you think twice about having a drink of water because lifting the glass just seems like an impossible task. So once C has been in bed this week I have barely moved off the sofa, tea has been drunk and not much else has been achieved.
I have stuck to my 30 minutes a day but this has mostly been walking and I really need to up my game. Food wise has not been too bad have resisted the extremely strong urge to survive off toast and toast alone.
On Monday I did venture off the sofa and have a clear out of clothes - I have a vac pack of stuff that is a wee bit too tight, it will be opened at the end of April and my word it had better fit!
So the moral of the story is I need to man up, I genuinely think if I can push myself to be more active through the day I will be less tired at night, if I can strengthen my muscles it will not be as much of an effort to hold everything in place. That's the plan anyway - I'll keep you updated!
Please give me a kick and make sure I move my bahooki!
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