Sitting down, standing still, moving forward!

So sometimes it hurts to move but more often it hurts more not to move! Last week I had a two days of sitting in one position for long periods of time (work conference) then a day of standing still (PTA fundraiser) and oh my did it take its toll. I am a fidget, I can't help it, it is all part and parcel of HEDS. Sitting still kills me! I am aware that for other people this is extreemly annoying and do try to minimise it, especially in conference type situations. However, by the end of the three days I was in agony. It hurt to move, it hurt to sit still. So rather than run as normal while Chloe was at swimming I went for the rest option and planned to keep it that way. So thank goodness for my mini personal trainer. We made it until about 14.00 untill she could be contained no longer (she had already been swimming that morning) so a bike ride it was. Except my finders were not working and my bike needed a new saddle. Not one to be easily deterred, little miss declared I could run, and she promised not to go too fast! So an hour later, she kept true to her word and I walked most of it, with the occassional run thrown in I felt......so much better. If it hadn't been for her then I would have lazed around and probably still felt rubbish on the Sunday. So moving is the way forward.

I did however get up at 6.30am, when I was staying in a hotel without the sleep terrorist, to go for a run! I feel like I am dedicated :-)

Got really quite excited as my EDS running vest arrived - you will definately be able to spot me in a crowd! Just need to get it back from the little lady now.

 

But for now I'll just keep on moving forward!

Frustrations and fears

Last week I was away with work and missed running. Not just didn't manage to run but actually missed doing it! I may have become one of those people who gets tetchy when they don't exercise......

Mostly I am plodding along and pleased with how things are going but on Sunday my shoulder kept popping out. It blooming hurt and it made me feel sick, the rubbish feeling is nearly done over 48 hours later. I am not sure if it is because I had not done much the week before, because I did a bit of strength stuff the day before or just because. I suspect it is just because.

Now I know that this is going to happen, it is part and parcel of HEDS. It doesn't make it any less frustrating. The pain is, well, a pain as is the general feeling rubbish which goes with it but just now a couple of days being completely out of action is making it worse. I am really enjoying training and not being able to do it is getting me down a bit. I'll be back running tomorrow though :-)

Luckily I had Chloe to keep me on the straight and narrow food wise so didn't just survive on toast!

It has also reminded me of the fear of something dislocating or just having a general flare up on the day of the race or just before. Logically I know there is no point in worrying, if it happens I'll just need to deal with it. I hope that training will make me stronger and flare ups happen less, but this may be wishful thinking......

Making progress

So I am quite enjoying this running lark, don't get me wrong it is still being mixed with a good chunk of walking. On Friday I covered 5k in 50 minutes, now this is not fast but it is a start. My toes went early on so I was pretty proud of myself for pushing through. Yesterday I did 5k in 47.33 really happy to see the time come down. If I can do it in 30 mins by Sept I'll be happy.

I am now running/walking 3 times a week, doing a different workout 3 times a week and having one rest day. And do you know what? I am really enjoying it. Today is an enforced rest day (one of my vertebrae has gone out slightly) and I'm a bit frustrated at not doing anything!

I'm enjoying it so much I've signed up for another run in June a bit more of a fun thing but still with mud and obstacles involved, for our local hospice.

Not listening seems to be working, although it is hard to ignore dislocated toes which at the moment my biggest problem. But food wise it is making a big difference to have everything planned out and just eating what is on the list. Not just to stop eating to much and unnecessarily but to eat well. Today the pain in my back is making my feel sick. All I want is toast but I went ahead and eat my planned lunch as it is what my body needs. I'd still kill for a slice of hot buttered toast though :-)

Back and toes aside I am feeling so much better, already I am experiencing less of the achy kind of pain that is always in the background.

Next week will be tough I am away with work quite a lot but will be packing my trainers and will do what I can!

Run for it!

I don't like running, I've never liked running. I fully accepted it when I was told not to run because of HEDS, and on the odd occasion I've tried running, I've not really enjoyed it, it hurt and well it's just a bit boring.

However, the whole Spartan thing requires me to run. This is the bit that worries me the most. Climbing ropes, scaling walls, crawling under barbed wire and running through fire have not stressed me out as much as the running part of it.

Turns out I love running! If it's along muddy paths, jumping over stuff, sliding down hills and risking losing your trainers. Today I ran just over 4k in under 35 minutes. I probably could have run a little bit more and walked a little bit less but I pushed myself to run for longer times and I ran up all the hills so I am happy.

My trainers are not fairing so well!

I think that running on the sodden ground, it is really muddy, takes away a lot of the impact and that's why I'm finding it more enjoyable. I also know I'm concentrating on my stability and core to ensure I don't fall so I'm not hyper extending. Good job it's not going to dry up any time soon!

My aim is to build up to 5k in 40 mins then try and get the time down to 30 mins. I never thought I'd be confident in saying that.

I'm also feeling the benefit of just eating what I have planned, I'm making healthier choices, not over eating and not feeling bloated and sluggish. I'm not weighing or measuring until the end of March so I don't get disheartened if there isn't much progress. Although to be honest, I feel so much better I don't really care if I've not lost much. For me this is all about being healthy.

It's been a good week!

Just do it?

I have been rubbish. There I've said it. Training has not happened, food has been rubbish!

I have always been a firm believer of listening to your body, but it would appear my body has been talking rubbish and mostly convincing me to eat toast and sit on my bahooki!

But I have had a slight revelation, thanks to a hypermobilty post on Facebook. So, as hypermobilty sufferers we are stretchy that's our thing, so what if our stomachs are stretchy too? I have a very bad habit of eating until I feel a bit sick, I don't get that comfortably full feeling, I go from hungry to totally stuffed. Hunger also attacks rapidly I don't tend to get a bit grumbly I proceed directly to ravenous. Now it may well just be that I am a greedy little piggy but there was a number of people who has the same issues. Could it be that a hypermobile stomach doesn't communicate properly with the brain? Or maybe like everything else it just stretches a bit more than it should. There is also the issue of getting light headed and dizzy if you don't eat regularly.

I have also been listening to my body when it says it is to sore or tired to exercise with the result that I have done nothing. Now it has been a bad couple of weeks, C had chicken pox so I was getting a couple of hours of sleep a night then I was away with work quite a bit. But nothing, well some walking ans swimming and bits but nothing proper. Because well it was just such an effort. So either I need to stop being so hard on myself or I just need to man the f**k up (sorry mum)

So I have made the decision to stop listening, I'm going back to planning my week out and eating just what is on the plan, no more no less, eating at regular intervals and most importantly eating well. I am going to push myself, no pain no gain and all that. Tiredness is not an acceptable excuse for not training, training will only be missed if I'm at a pain level of 7 or more.

So the answer is man up and just do it!

The fog

It is not the fog outside that is hampering my progress, although going out in the freezing fog is not that appealing! But the brain fog. One of the issues with Hypermobile EDS is tiredness. Which sounds a bit pathetic doesn't it? I mean everyone gets tired. I have a 5 year old sleep terrorist so I am permanently at some level of tiredness but when EDS tiredness hits it is on a different level.

This week it hit, I can only describe as being a bit like when you have flu, you  know when everything aches, and you are just so exhausted you could happily cry. Even the thought of actually walking upstairs to go to bed is a bit much of an effort and you think twice about having a drink of water because lifting the glass just seems like an impossible task. So once C has been in bed this week I have barely moved off the sofa, tea has been drunk and not much else has been achieved.

I have stuck to my 30 minutes a day but this has mostly been walking and I really need to up my game. Food wise has not been too bad have resisted the extremely strong urge to survive off toast and toast alone.

On Monday I did venture off the sofa and have a clear out of clothes - I have a vac pack of stuff that is a wee bit too tight, it will be opened at the end of April and my word it had better fit!

So the moral of the story is I need to man up, I genuinely think if I can push myself to be more active through the day I will be less tired at night, if I can strengthen my muscles it will not be as much of an effort to hold everything in place. That's the plan anyway - I'll keep you updated!

Please give me a kick and make sure I move my bahooki!

And so it begins

Well I am now signed up to do the Spartan Sprint! Although having a slight issue getting the team set up but am sure we'll get there.

It is not until September 21st so I have plenty of time but I have a lot to do. The challenges are actually not phasing me too much - yes they are going to be tough. However, the thought of running 5k (I know it is really not far) makes me want to cry a little.

So I am starting gradually, I will do at least 30 minutes of exercise a day. This may be anything from Insanity to a brisk walk, dancing with C (which is more of a workout than you would think, there are a lot of lifts involved) to, gulp, going for a run. But I will do it. Everyday.

Everyone struggles to get motivated to exercise, there is always something better to do, like I don't know, waiting for facebook to update. however, it is extra tough when you are already hurting, the sofa seems like a far better option. After all when you ache all over why would you want to add to it? But, really what is the alternative? Yes sitting on the sofa is and immediate relief but in the long run being fitter and stronger can only be beneficial. So, for now I will be doing my 30 mins a day, by March when I am in the habit and it is, hopefully, second nature, I will start regularly running. yes, me running. Remind me again why I am doing this?

There is no point in getting into the regular exercise habit if I do not eat right. Now overall my diet is not that bad. I don't drink alcohol, mostly drink water, cook most of our meals from scratch, watch sugar and fat intake. I'll not lie sometimes this just means watching chocolate go from packet into mouth :-)

One of the reasons I am doing this crazy race is to show C that you can do anything you set your mind to and to be a positive role model to her. It occurred to me the other day that we do a lot of moaning about advertising aimed at kids and the amount of junk that is sold solely with kids in mind. While I agree there is way too much rubbish out there marketed at kids, actually we are more influential than we know. C helps us decide what to have for dinner when we plan meals and when it is just me & her she gets to pick dinner. Her choice for the past few weeks (except tonight when she went fro haggis) has been salmon, boiled egg, veg and a wee dollop of mayo. This came about because I had it one night when she'd already eaten. As I have been thinking about it if I eat chocolate or MrF has a packet of crisps she will ask for them, but if just asked what she wants she will go for fruit 9 times out of 10.

So as much as I owe it to myself to eat a healthy, balanced (I'm all for the occasional treat) diet, I owe it to my daughter to show her that I make healthy choices.

Linking up with the lovely Autismmumma and #wobbleswednesday http://www.autismmumma.com/2014/01/show-me-the-veggies-wobbleswednesday/